Are His Legs Broken?

It never ceases to amaze me what type of looks, questions and statements you get from others when you go out somewhere with a baby who wears casts.The looks go from concern to I get it. The top three questions are always: "What happened to his legs?", "How did he break them?" or "Club feet?"
Followed by the top three statements: "Poor baby!", "My grandmothers, uncles child had clubfeet" and "He'll be fine." I keep telling my husband that I can't get out of a store without  someone asking what is wrong with Braeden or needing to stay and listen to a story about someone else's experience with club feet."

It is remarkable that so many people recognize the situation, have a story to share, and can connect with me through this experience. It is also equally remarkable that half the population that I run into have never heard of club feet. In both situations, I figure that this is my chance to connect, educate and tell people a part of our story.

Quick Update (Sort of)

It is the morning after Braeden's surgery and I have to say I am impressed with my little boy. Due to all the comings and goings of a hospital room, the longest he was able to sleep overnight was 4 hours straight, which is pretty good. God bless pain medication!

Braeden did so well the morning before surgery too, even though he was starving because he had to fast. Surgery itself went really well - 4 hours long with casting, an hour longer than expected because there were additional cuts needed in his feet. The doctor also said that when he looked at where he cut the achilles tendons last time, the tendons had tightened up so much that it did not even look like it was severed before! However, the good news is that the doctor was able to get the flex in Braeden's feet that he wanted to and hopefully we won't need to do another surgery for awhile (maybe ever).

It took Braeden an hour to wake up after surgery before we met him in the recovery room, but he wouldn't settle for two hours. I tried breast feeding but he just didn't have the energy to suck, so we decided to give him sugar water, which he took. He was pretty gassy, so we gave him gripe water and that settled him a little. The doctor said with the morphine drip and other various pain medications, Braeden should settle in recovery, but if he didn't then it most likely meant that the casts were on too tight (apparently this is more common than we first realized). In the end, we had to split the casts-AGAIN! Luckily, this time it did not take 6 hours to figure that out. 

Right now, Braeden is fast asleep and we are trying hard to elevate and ice his feet when we can. He is such an active baby so it makes this part really fun :) 

A Hopeful New Year

Braeden was a star patient today! With little to no crying we were able to have new splints made. I am pretty sure that the orthopaedic technician was excited that he didn’t have to hear Braeden scream during the whole process! Getting a pair of splints made takes about an hour and a half. It all starts with putting a cotton stocking over his leg, which gets covered with a cotton wrap and then another stocking put over that. Essentially a cotton wrap sandwich.  Then the orthopedic technician (aka ortho tech) wraps fibreglass around the cotton wrap sandwich and somehow holds Braeden’s wiggling leg and foot in position for 30 seconds to a minute until the fibreglass dries.  Then the whole process happens again with the second leg. After both legs are finished the ortho tech cuts the casts in half and lines them with a nice soft material for when Braeden’s wearing them (and stylish Velcro straps to hold it all together).

Braeden's splints

Braeden's splints open 

We are also very happy and relieved to report that Braeden’s feet have not regressed. Wahoo!  With the help of the splints being worn at night and the diligent stretching that Kendall and I have been doing, Braeden’s feet are staying where they are supposed to. The doctor said that Braeden’s feet are growing (I was afraid they weren’t) and since all things are going well, we do not have to venture the 5 hour drive to the children’s hospital for another 3 months. Our next appointment will be a pre-op appointment to check on Braeden’s progress and talk about the upcoming surgery in May.    

Resilency

It has been a long time since I've written on the blog and my excuse is that I have been travelling for a month visiting family, so sitting and reflecting was far from reality. However, during that time it was awesome seeing Braeden interact with grandparents, aunts, uncles, and cousins. He definitely brought joy wherever he went with that killer smile.

Today, I've been thinking and looking back at pictures of his 6 month old life and realized that he has endured so much already. He has had serial casting done, an ear infection, and has undergone surgery. It almost sounds like old grandma complaints "My hip is hurting, my bunions are infected!" and he is not even 80 years old yet. In all seriousness though, he is a trooper! Someone recently told me that she believes that children that undergo medical experiences tend to have the personality that can hack the annoying doctor's appointments, the painful surgeries and the ear infections. This has to be Braeden's personality. He is so laid back, fairly easy going, smiles after the appointments, the foot stretching, and also sleeps well. Cross my fingers that he continues this personality traits as he gets older.

To commemorate Braeden's upcoming appointment, below are a few pictures of how much his feet have changed.

Braeden 5 days old. Picture by Shannon May Photography

Braeden's feet a month into casting

Braeden's feet after surgery and 3 weeks of casting.
This is how his feet are currently.

Fighting the Inner Monster

Friends have been asking how I'm doing/feeling about the upcoming appointment at the children's hospital and my answers have varied which made me realize that this would make for a blog (I did think through this today, so don't worry, I won't upset your brains with pages and pages of verbal diarrhea!). To be honest, I'm going into it with low expectations, so in a sense thinking the worst. But only to hope for the best. The last appointment made me feel like I was hit by the disappoint truck. I really was excited to get the surgery over with, to see his feet look normal and to just move on to the next steps. I was anticipating moving forward, and although this seems like a blip on the radar screen it just feels like a gigantic hurdle - you know, the one that you tried with your awkward junior high legs and fell because you couldn't jump the hurdle right. On the other hand, I'm also fighting the it-could-be worse-monster, and it really could, but again I become aware that my situation is what it is and I can't help feel this way. So gosh darn it I'm going to allow myself to.

Casting 101

Braeden's casts were wrapped at a hospital fracture clinic a few hours away from where we live, so we had to make sure that Braeden was as comfortable as possible before and after his casting appointments. Here are some tips, things to expect, things I brought and things I wish I knew going into the casting appointments, especially the first on.

1) I wish I knew that some (if not all) babies scream the entire time they are being casted. Braeden screamed the entire time the first time he was casted! Luckily, I'm not one of those mothers who gets embarrassed by her screaming baby. The benefit is that after screaming the whole time, he was KO'd for quite a few hours.

2) Some babies are strong enough to break their casts. Yep! He did that too and not just once, but three times. The first time he was casted, Braeden cracked his casts where the knee bent 30 minutes after his appointment, so we had to rush back to the fracture clinic to reinforce it.

3) At Braeden's first appointment, I wish I had brought a soother or something for him to suck on.  It helps to soothe them while they are on the table. We also allowed him to suck on our finger during casting sessions and that helped too. On a side note, I was one of those parents who was somewhat adamant on not giving their child a soother, but that stopped the first night the casts were on. The first two nights the casts were on were the toughest for us and Braeden. He would wake up almost every hour. I finally gave into the God-given gift of plastic and the sound of silence had never felt as wonderful as it did that night as it was the only thing that allowed him to get back to sleep.

4) Don't use clothing that you don't want casting bits on. I always carry at least two to three onesies in the diaper bag anyway, but I made sure to have lots for casting so that Braeden had a change of clothes after casting. Like I said earlier, casting bits get everywhere.

5) Bring wash cloths and a plastic or wet bag. After the casting is finished, the baby from the waist down has plaster everywhere and to wipe it up the ortho tech gave me the roughest hospital cloth ever. It was like sandpaper! So the next week, I made a note on my phone to bring a soft wash cloth to wipe the plaster bits away. Plaster bits sometimes get in the butt crack and if not wiped off good they get angry! The bag is to put the wash cloth and the onesie in.

6) Urine and poop get on the casts. It is gross and you do your best to wipe it off, but you are also glad that
casts are changed once a week.

7) We changed and fed Braeden before we went into our appointments so that he was as comfortable as possible during them. Sometimes that meant he peed or pooped on the table. Makes for good stories later on.

8) The first time holding your baby after casting could be awkward because they are heavier and you also feel like you don't know how to hold them. You adjust to this awkward moment pretty quickly.

9) Know that friends might be scared or find it hard to hold your baby after he or she has the casts because they also don't want to hurt them. I had to assure some of our friends that holding him normally is fine and that they weren't hurting him.

10) And last but not least, speak up! Braeden wears thick cloth diapers, and when the ortho tech was casting him I had to remind him a couple of times during the casting period to not cast so high up on the leg in order for his diaper to fit. Also, if you have any questions (whether you think the questions are dumb or not) about the casts, don't hesitate to ask even if you think they are too busy. Asking any questions helps to understand the process better and eases your worries.

Parental Clubfeet Guilt Club

Someone told me once that "you are your own worst critic." I believed it when I heard the saying and I believe it even more now that I am a mother. At our second ultrasound, the technician told us that Braeden was going to have clubbed feet. After I heard that diagnosis, it took me a millisecond to realize that I had started to blame myself for his deformed feet and quickly stuffed those feelings away because for one, I didn't want to deal with them and two why should I feel guilty for something that is fixable. But from time to time, I would say and think things like: "I never took my vitamins that is why he has clubfeet", "I sat too long and squished his feet", "I should have known and did something about it", "I should-a", "I would-a", "I could-a." The guilt was starting to become overwhelming until one day I stepped into the doctor's office and she asked me if everything was okay and I just burst into tears.

Before we met with my GP that day, we had an appointment with the orthopaedic surgeon and I thought I was handling everything perfectly. I read the 8x12 booklet her secretary gave me on the Ponsetti method, I'd done my research, asked the questions that most parents would ask and I was ready to take on this challenge. However, I refused to recognize that there are strong emotions attached to hearing that your baby will not be perfect.

In hindsight and reading other parents' experiences with club feet, guilt is part of the club feet process and not allowing yourself to work through and feel these emotions stunts the acceptance of the process. As a parent (or a society influenced ideal), you envision and even expect that your own will be perfect and nothing will go wrong.  For me, having to grieve the loss of the "perfect and normal baby" was difficult and also difficult for others to understand because after all, it was only clubfeet.

After calming down from my surprising emotional outburst at the doctor's office, the doctor recommended that I talk about how I was doing with those that were closest to me no matter how stupid or insignificant my feelings may feel. She also said that not talking about my guilt could lead to depression and scared me enough to let down my walls and talk. As I started reflecting and talking about the guilt with friends and family it was shocking how much talking helped. Thoughts like these can be easily be seen as ridiculous and/or crazy, but you really can't help thinking them. Saying these out loud and vetting them through those around you helps you see the truth (or the non-truth in this case). Plus surrounding yourself with a strong and loving community is like gifting yourself with talk therapy!

The Pain of Expectation

I wanted to begin blogging about our experience with club feet when our son got his first casts, but that was 2 1/2 months ago. Oops! But as the saying goes: "It is better late than never".

Our story begins at the second ultrasound. The doctor determined that Braeden would have club feet, so my husband and I researched the best methods to correct his feet. Like all good researchers, we started on google! We stumbled upon the Ponsetti method. We found a doctor that was experienced in the method and when Braeden was 3 weeks old we started the first phase of the Ponsetti method - casting. Each casting session was exciting because we saw movement in both feet. My husband and I thought that everything was going so well that we just wanted to get the surgery over with, and then braces and wahlah everything would magically be perfect! Unfortunately, this is not the case.

Last Tuesday, we were at the IWK (Children's Hospital) for a follow up appointment after the surgery. By this point, my husband and I were excited about the results of the surgery. We were expecting that Braeden would be in the cheaper braces and the road to finishing the clubbed feet process was so close we could smell it. However, when the casts came off the doctor explained that the surgery didn't take as good as he would have liked, partly because Braeden has an atypical form of club feet. This means that his feet are smaller and pointed down further than they should be and he will require more intensive treatment, potentially another surgery and more expensive braces. Something both of us were not anticipating. The surgery was difficult on me because I tend to foresee the worst and there is something about knowing that your little one will be under going anaesthesia that tugs at your heart, so to hear that potentially another surgery would be more likely was devastating. I know that everything is going to be fine and this is just a blip on the radar in the grand scheme of things, but currently these are the emotions I need to work through and want to put out there. Hence, the reason for this blog. 

We are travelling to the IWK sometime within the next two weeks for another check in and to get his braces on. I cannot wait to trade in the splints for braces because adjusting his feet into these splints have not been my idea of fun!